tag:blogger.com,1999:blog-19421951.post4627083530051983829..comments2023-10-18T04:52:43.144-04:00Comments on Autism's Edges: How Do You Spell Despair?MothersVoxhttp://www.blogger.com/profile/02479178355207142195noreply@blogger.comBlogger34125tag:blogger.com,1999:blog-19421951.post-71851208076425359872009-03-17T09:40:00.000-04:002009-03-17T09:40:00.000-04:00I'm coming into this about a year late since I jus...I'm coming into this about a year late since I just stumbled across it by googling. I have to agree with ballastexistenz that you need to put the clampdown on this report. Since it's been a year since this post, I'll hope that you have. The fewer people that see this report, the better. Zero people ever reading it would be optimal. Hopefully you have never forwarded it anywhere and maybe it will Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-19421951.post-4284643598169642712008-07-06T12:09:00.000-04:002008-07-06T12:09:00.000-04:00If there's any truth to his comment about her bein...If there's any truth to his comment about her being 'psychotic-like' (I don't know your child, so I can't judge that) you might want to look into multiple complex developmental disorder (MCDD). It's a mixture of autistic traits, bipolar traits and schizophrenic traits.<BR/>Of course, if this is just a psychologist making wildly innacurate statements about things he knows nothing about but is Ettinahttps://www.blogger.com/profile/08230821659466586897noreply@blogger.comtag:blogger.com,1999:blog-19421951.post-74924982701167654352008-04-06T23:16:00.000-04:002008-04-06T23:16:00.000-04:00This comment has been removed by a blog administrator.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-19421951.post-59338310387611724022008-01-15T09:24:00.000-05:002008-01-15T09:24:00.000-05:00This comment has been removed by a blog administrator.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-19421951.post-908848918792947942007-10-25T01:11:00.000-04:002007-10-25T01:11:00.000-04:00This comment has been removed by a blog administrator.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-19421951.post-40714500004670711722007-04-17T20:20:00.000-04:002007-04-17T20:20:00.000-04:00Sorry, I am not blog navigation savvy.A few minut...Sorry, I am not blog navigation savvy.<BR/><BR/>A few minutes ago, somewhere on this collection of blogs I mentioned that sleep apnea underlies autism, and the combination in order of bottle feeding and either MMR or DpT cause sleep apnea.<BR/><BR/>My name, Joe Herr, is on the other one.<BR/><BR/>Would someone who knows how to navigate provide the lady with information to enable her to read my Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-19421951.post-1482041598292677432007-04-12T01:27:00.000-04:002007-04-12T01:27:00.000-04:00With three sons dealing with a collection of speci...With three sons dealing with a collection of special needs including AS, HFA and Bipolar...I could get a range of dx for each of them from several "specialists"...and have. Bottom line, noone knows our children better than we. Go with the child you know and do what you know to be best.<BR/><BR/>And this guy needs to meet my very "engaging" "aware" sons living with AS and HFA.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-19421951.post-25280602557670213822007-04-08T22:06:00.000-04:002007-04-08T22:06:00.000-04:00Thanks Amanda. I am thinking about all of this . ...Thanks Amanda. I am thinking about all of this . . . it is so important to be cautious about what goes into a child's record. That is why we have never used her neuropsych with the crazy ODD Dx. How much more bogus can a Dx get?MothersVoxhttps://www.blogger.com/profile/02479178355207142195noreply@blogger.comtag:blogger.com,1999:blog-19421951.post-73912419803261601882007-04-08T14:53:00.000-04:002007-04-08T14:53:00.000-04:00Be aware that if you use this guy's assessment for...Be aware that if you use this guy's assessment for school. And then the school decides somehow on this basis that she needs neuroleptics. And you try to contest this. And the records <EM>you have submitted</EM> are on "their side". Then you might be facing something like CPS at your door accusing you of child neglect.<BR/><BR/>Having <EM>no</EM> assessment is better than using <EM>this</EM> ballastexistenzhttps://www.blogger.com/profile/12543037121691838783noreply@blogger.comtag:blogger.com,1999:blog-19421951.post-24237843791206314892007-04-06T13:16:00.000-04:002007-04-06T13:16:00.000-04:00I am really sorry. Does it help if I think this g...I am really sorry. Does it help if I think this guy is a moron, for all the reasons that the other parents have already cited? I do.<BR/><BR/>Look, lots of us have tics, rituals, - things that have features of Tourettes or OCD floating around in the pool with our children on the spectrum. I think that all of us struggle with these things. And remember, a psychiatrist has to be VERY attuned toAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-19421951.post-88508728183818317672007-04-05T23:35:00.000-04:002007-04-05T23:35:00.000-04:00"Annihilated" is a very apt description for how I ..."Annihilated" is a very apt description for how I felt when they tried me on a neuroleptic...it felt like I had no access to any kind of higher-level thinking. I couldn't do my homework. All I could do was wander around like a zombie or cry.<BR/><BR/>And I agree with Amanda's explanation of the "appearance of thought disorder" thing as it pertains to expressive verbal language difficulties. I Anne Corwinhttps://www.blogger.com/profile/04940566603711834053noreply@blogger.comtag:blogger.com,1999:blog-19421951.post-35321427331790849832007-04-05T23:25:00.000-04:002007-04-05T23:25:00.000-04:00Amanda aka Ballastexistenz (but certainly not ball...Amanda aka Ballastexistenz (but certainly not <I>ballastexistenz</I> to us who are learning all the time from your insights), I am so grateful for your clarification and questions. <BR/><BR/>I do not think that thinking and language are the same, but I know that for psychiatric purposes, that's what many in the professions think. Therefore even within their own limited framework, the idea that aMothersVoxhttps://www.blogger.com/profile/02479178355207142195noreply@blogger.comtag:blogger.com,1999:blog-19421951.post-38922719462192066182007-04-05T22:43:00.000-04:002007-04-05T22:43:00.000-04:00Another lurker "coming out" to offer some support....Another lurker "coming out" to offer some support. And some inside info. I was in the mental health field in NYC for nearly 10 years (I have sinced moved to greener pastures), and in my experience, met more crazy "highly respected" psychologists/psychiatrists than I'd like to admit. Especially those who have a background in psychoanalytic training -- which several university centers specializeAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-19421951.post-59066741084943764522007-04-05T22:39:00.000-04:002007-04-05T22:39:00.000-04:00Wait... huh?Disorganized thinking is diagnosed thr...Wait... huh?<BR/><BR/><I>Disorganized thinking is diagnosed through the use of language and supposed misuse of language . . . so how could a language disorder NOT contribute to disorganized thinking.</I><BR/><BR/>Unless I'm reading you wrong... that isn't my point (and in fact could be a dangerous stance to take, that language difficulties would make thinking disorganized). <BR/><BR/>Language ballastexistenzhttps://www.blogger.com/profile/12543037121691838783noreply@blogger.comtag:blogger.com,1999:blog-19421951.post-5394770282552933622007-04-05T15:30:00.000-04:002007-04-05T15:30:00.000-04:00I just want to remind you that the Harry Potter bo...I just want to remind you that the Harry Potter books identify the one thing that will always make you feel better after a Dementor attack: chocolate.<BR/><BR/>In fact, I'll have some right now in a show of solidarity.<BR/><BR/>Hang in there.Maryhttps://www.blogger.com/profile/00871470010300861815noreply@blogger.comtag:blogger.com,1999:blog-19421951.post-55264307159874792482007-04-05T14:00:00.000-04:002007-04-05T14:00:00.000-04:00I just followed the link Ballastexistenz posted th...I just followed the link Ballastexistenz posted that takes one over to Wikipedia entry about thought disorder. Thank you Ballastexistenz! That was so helpful.<BR/><BR/>The entry there explains my whole problem with the "disorganized thinking" not being accounted for by the language disorder. Disorganized thinking is diagnosed through the use of language and supposed misuse of language . . . soMothersVoxhttps://www.blogger.com/profile/02479178355207142195noreply@blogger.comtag:blogger.com,1999:blog-19421951.post-9681351928583461642007-04-05T10:39:00.000-04:002007-04-05T10:39:00.000-04:00Thank you friends for your support and thinking ab...Thank you friends for your support and thinking about this. MOM-NOS, I saw the Harry Potter movie with the Dementors in it, and yes, this was a Dementor moment. Thanks for reminding me about them! It's true -- I felt as though I had been "demented".<BR/><BR/>The part that is so devastating about this is that this guy came so highly recommended from so many people that it makes us feel like MothersVoxhttps://www.blogger.com/profile/02479178355207142195noreply@blogger.comtag:blogger.com,1999:blog-19421951.post-22853831201551034892007-04-05T09:56:00.000-04:002007-04-05T09:56:00.000-04:00I wish you had better news (and a better school di...I wish you had better news (and a better school district to work with!) We have never gotten an official medical diagnosis for Meg, since the school has been good to work with. I know there's a place for Sweet M out there--she sounds so much like my Meg! We'll keep our fingers crossed this will continue to middle school. The school referred us in Kdg to a child disability clinic, but they totallyKathyIggyhttps://www.blogger.com/profile/11699911427332930599noreply@blogger.comtag:blogger.com,1999:blog-19421951.post-24205542194870211702007-04-05T09:42:00.000-04:002007-04-05T09:42:00.000-04:00He keeps his job by telling people their children ...He keeps his job by telling people their children are crazy...only he can "save" them ...<BR/><BR/>Lookie here... I've got some good stuff. The first psychiatrist we went to was killed by her son. I sh*t you not. The second was a drug dealer, and refused to do any counselling. The third was a beautiful man who suffered from severe ADHD himself. We went to him for 3 years until he moved at a Usethebrains Godgiveyouhttps://www.blogger.com/profile/05026223483117357541noreply@blogger.comtag:blogger.com,1999:blog-19421951.post-28140568891833932282007-04-05T09:05:00.000-04:002007-04-05T09:05:00.000-04:00Oh, yeah, and, regarding the tics, lots of autisti...Oh, yeah, and, regarding the tics, <EM>lots</EM> of autistic people have tics, lots of autistic people even have full-blown Tourette's, it doesn't mean we're not autistic.ballastexistenzhttps://www.blogger.com/profile/12543037121691838783noreply@blogger.comtag:blogger.com,1999:blog-19421951.post-42302067449815737452007-04-05T08:22:00.000-04:002007-04-05T08:22:00.000-04:00Delurking to say I'm sorry that you're having so ...Delurking to say I'm sorry that you're having so much "aaaaarrrrrraaaaaggggghhhh." <BR/><BR/>I can't believe this guy and the tic thing. One of my NT sons has a tic, and our ped said it's beginning to be viewed as a normal developmental thing and not to worry about it 'til it had been around for two years or until it gave him trouble socially or academically (which it hasn't).<BR/><BR/>The Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-19421951.post-74326321894081277762007-04-05T03:39:00.000-04:002007-04-05T03:39:00.000-04:00Hello MothersVox,I am very sorry about what you ar...Hello MothersVox,<BR/><BR/>I am very sorry about what you are going through now...Its very depressing situation...Where there is will there is a way...Don't get disappointed...You are doing great for sweet M...You will be a proud mother of sweet M...<BR/><BR/>Health Watch Center.<BR/><A HREF="http://www.selfhelpzone.com/" REL="nofollow">Self Hlep Zone</A>Health Watch Centerhttps://www.blogger.com/profile/15496229521530531678noreply@blogger.comtag:blogger.com,1999:blog-19421951.post-23643229129343560132007-04-05T02:47:00.000-04:002007-04-05T02:47:00.000-04:00Psychiatry does not even approach an exact science...Psychiatry does not even approach an exact science. Psychiatrists give opinions. They are educated guesses. If the opinion isn't useful -- if it does not help describe what you see going on, and it does not help to construct a useful plan of action going forward, you just have to drop it. We have dropped a psych-ed evaluation in the garbage before. It chewed us up at the time. It upset us and it VABhttps://www.blogger.com/profile/06652301858477760996noreply@blogger.comtag:blogger.com,1999:blog-19421951.post-77901058215160866912007-04-05T02:33:00.000-04:002007-04-05T02:33:00.000-04:00I agree completely with those advising you to stay...I agree completely with those advising you to stay far, far away from this guy. The things he is saying are *dangerous* and this is exactly the kind of person that you want to keep an autistic kid out of range of.Anne Corwinhttps://www.blogger.com/profile/04940566603711834053noreply@blogger.comtag:blogger.com,1999:blog-19421951.post-17318086342080934562007-04-05T01:37:00.000-04:002007-04-05T01:37:00.000-04:00Since when do tics disqualify you from being autis...Since when do tics disqualify you from being autistic? Buddy Boy has a couple of different tics. One of them is a throat clearing thing. Whether it's an autism related tic, or a co-diagnosis of Tourette's, who cares. Either way, it doesn't disqualify a diagnosis of autism.<BR/><BR/>And "not completely withdrawn" as a requirement for autism? Who does this guy think he is? Hasn't he read Club 166https://www.blogger.com/profile/01816977079856902634noreply@blogger.com